We Row For William: Family of 6-Year-Old Boy with Terminal Illness Launches Urgent Campaign to Fund Life-Saving Gene Therapy
One Little Boy. One Big River. One Chance to Save His Life.
Medford, OR, United Kingdom, 11th Apr 2025, – “It’s just one little boy,” they say. But to everyone who knows 6-year-old William Jackson, he is everything. Diagnosed with Duchenne Muscular Dystrophy (DMD) at just 2 years old, William is now in a race against time. And his family is rowing—literally—to save his life.
DMD is a rare, fatal genetic disorder that causes progressive muscle degeneration. There is no cure. Without treatment, boys like William typically don’t survive beyond their twenties.
But there is hope.
A nonprofit biotech company, Cure Rare Disease, specializing in genetic treatments, has developed a CRISPR-based gene therapy—an experimental, individualized approach that could extend his life and impr...